I Feel Like Half My Body Needs To Be Soaked In Ice While The Other Half Covered In Heating Pads…just

😂😂 explains my whole life...

My typical visit to an Art Store.

I’m out of canvas boards. I think to myself. 

Then follows a long, elaborate planning process. If I leave work by 6, I can rush to the art store on the way back, and still be home on time. The entire day is spent in a jittery excitement of getting my hands on those damn canvases.

It’s 6:05. I’m at the art store. Soaking in the beauty of my surroundings. I look at the canvases, and if someone observed closely, they would see me drooling. I resist picking up the largest one available, and modestly pick up what I had come for. Eight by tens. Yup, those are the ones I need. How many, you ask? As many as they’ve got in the store.

And then as I casually walk towards the billing counter, I can’t help but notice (because I’m seeking it out) the paint aisle. Didn’t I use up all my white paint!? I don’t recollect, but decide that I have, and pick up a tube. What about texture white? Yup, picked a jar. Oooh would you look at that beautiful turquoise? In the shopping basket.

As I decide that it’s time to leave, I remember that there are only a few blank pages in my travel sketchbook. Walking towards the sketchbook aisle is like opening a can of worms. I know what’s gonna happen, and yet I can’t resist it. Gotta pick up a tiny sketchbook that can fit into all of my purses. So, what do I do? I pick up an A3 watercolour block. Perfect. Oh would you look at that charcoal!? I think to myself, having never used charcoal successfully. I will now. Of course I will.

Three brushes, a painting palette and a set of pastels later, there I am, standing at the billing counter. My eyes glace at a beautiful display of writing pencils. These would be a perfect addition to the seven hundred pencils I already have. Forty five minutes later, I walk out with my bags heavier, my wallet lighter, and I’m smiling. Perfect.

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

I don’t know if it’s my autism, but I struggle to understand what they mean because they aren’t actively saying what the word is. Most of the time there are a lot of words that could fit there so how do I actively know which one they mean? I rather people just say what it is so I’m not left guessing.

hot take but censoring words with asterisks and slashes and other non-letter characters is not only useless but in fact actively counterproductive to its goal of preventing ppl from being triggered (also ableist)

When you're nervous to use aac even though you need it because you don't want to "annoy " anyone or make things "harder" for them

Like, I really need people who are against self diagnosis, the majority of whom had the privilege of being diagnosed in childhood or adolescence, to understand how racist, classist, and ableist this viewpoint is.

So many people of color go undiagnosed. Their adhd/autism is chalked up to behavioral problems and no one bothers to look into it further.

So many poor people don’t have the money to be able to afford getting a formal evaluation. That shit is expensive.

So many people get misdiagnosed. Afab adults in particular are more likely to get diagnosed with BPD when they actually have adhd or autism. People with a trauma history have their symptoms chalked up to trauma and all adhd/autism specific symptoms are ignored.

If you were diagnosed as a child or teen you have absolutely no right to dismiss people (especially adults, afab people, and people of color) and act like self diagnosis is harmful. Most people who self-dx do so after extensive research and they know themselves better than you. Self-dx doesn’t take anything away from people with a formal diagnosis; it helps the individual find an understanding community and coping skills that make their lives easier. If you’re bothered by that, that says a lot about your character.

accommodations i’ve had approved as an autistic college student

helloooo today i finally had a meeting with the disability office and have accommodations after 2 years of being in college without them. im autistic and have cptsd/dissociative issues and had a hard time finding what was even available to me to request for accommodations so i wanted to make a list to help anyone else who might be having trouble.

• Priority registration

i get to register for classes earlier each term to make sure i can create schedules that’ll work for my routine

• Extended time on assignments

self explanatory i think? was also offered extended time on tests or a separate room to take them but testing isnt where i struggle

• Flexible attendance

as long as i email beforehand i dont have to stick as strictly to professors attendance policies

• Alternative formats

if i buy a physical textbook i can request the ebook/pdf/audiobook for free to have multiple methods of studying depending on what works for me on a given day

• Note taking

allowed to audio record class and send to a service called messenger pigeon who will give me a transcript of the class and professional notes based on it

• Access to lecture notes

able to access professors lecture notes prior to class/instruction

• Devices

allowed to have phone/ipad/laptop for social buffering and notes in classes that may have policies against electronics

• Flexible participation

no cold calling, option to work alone for group projects/assignments, not required to present in front of class

if anyone has any questions lmk these are just what i have been able to get at my school so far! hope it helps

edit: this is blowing up so fellow autistics, students, language nerds, etc pls be my mutual i want friends lol my dms are also open any time !!

Reblogging this because I needed to hear it

Let the Following be Understood

No one is entitled to your body, except you.

No one is entitled to your time, except you.

No one is entitled to your abilities, except you.

No one is entitled to an explanation of your craft, justifications or to your craft as a whole, except you.

Your personal existence is yours. Feel free to share it but if someone makes you uncomfortable or demands something, understand that it is yours and your personal expression and you are not obligated by any means to need to justify or give parts of yourself to someone who wouldn't give you the same luxury. Don't let entitled people steal your soul, your heart, your being.

notes for my impostor syndrome:

• no, it's not painful to walk for abled-bodied people

• no, healthy people don't usually use every chance they get to lean against walls or sit down

• no, ableds don't dream about shower stool

• no, ableds don't celebrate days when they're not in pain. because usually they're not in pain

• no, ableds don't want to stop walking mid-way, lay down on the ground, curl up and cry and whine from pain

• no, ableds aren't exhausted by their own bodies 24/7

Remember to Change Paragraphs When….

•A new character comes along

•A new event happens

•A new idea is introduced

•The setting changes

•A new person is speaking

•Time moves forward or backwards a lot

•The “camera” moves