I’ve Decided On Which Story I Want To Tell First. Very Excitedddd

Shout out to people who use adult diapers

Shout out to people who have chronic UTI

Shout out to people who have catheters

Shout out to people who have urostomys

Shout out to people who still wet the bed

Shout out to people with kidney scarring

Shout out to people who deal with kidney stones

Shout out to people with kidney cancer

Shout out to people with kidney failure

Shout out to people who I didn’t mention but still have kidney/urinary tract issues

I love you, I know it sucks, the judgement sucks, the symptoms suck. You’re not gross, it’s okay to talk about it. Your suffering isn’t taboo, never let anyone treat you like it is.

oh my gosh this is so helpful ive always felt so stupid for not knowing how to do IDs tysm for the info 😭🙏🏻

On Image Descriptions

We all know that feeling, we think our image descriptions are not good enough. We think they’re too short and insignificant. We wonder if it’s worth it posting one at all, but it’s always worth it. And here is why:

Even if an image description doesn’t mention everything in the image, it tells you a million things which aren’t in the image.

If your description is [ID: Reaction image of a nodding woman. /end ID] it tells you one million things. Such as: The image is not a tweet adding further information or context, it’s not a screenshot of a Snopes article debunking the post, it’s not someone disagreeing.

Those six little words, that nodding woman, it might not seem like a lot. It might seem like you can skip right over it, like it’s not worth mentioning - but it is.

An image could always be a wall of text explaining why OP is wrong, and simply knowing that’s not the case is super useful. Knowing that it’s just a reaction image, just a meme, just a photograph, is super useful.

Even a bad ID tells a lot.

yes omgosh im having such a hard time finding brightly coloured wool yarnnnn

i just want natural fibre thats colourful pleaseeee

wish be knit with cool yarn rn

BFL & targee & cormo & rambouillet & —

i desperately wanna live on linphea its stunninggg and please if i could also be the princess of it that would be great tysm

and magic it would be kind of a mix between morphix and illusions? i wanna be the fairy of creativity and have the ability to “paint” and “sculpt” whatever i want and it appears

I have a question for the fans of winxofandom. If you were in the world of winx, what kind of magic would you have, what planet would you like to live on? I'm interested in reading!

YES YES YES. it is incredibly hard to understand our own bodies and feelings.

this is why we need doctors to really educate themselves by taking the time to listen to us and learn from us. a standard medical textbook isnt going to explain the medically complex to you, only working with medically complex people themselves can.

“consistency is key” doesn’t apply to many disabled people.

going to the doctor and having them tell me that, and that i need to stick to a schedule they have deemed appropriate is completely comedic.

what about the fact that my health and ability to do anything is a constant gamble? it can change drastically and almost instantly at any given time.

what about how right now i can stand up and make myself breakfast, but by lunch time? who knows. i may be unable to even sit up.

how do u listen to me explain that i dont have a daily or weekly schedule because of how unpredictable my health is, and reply by giving me a schedule.

do you not think i have tried to stick to a routine and schedule like all the healthy people around me??

all i see is people with consistency. i grew up thinking i was broken because i couldnt. i have pushed myself to breaking points trying to fit your mould of success and health.

im sorry if you experience this too. im going to make another post about what consistency can look like for me and other disabled people. because while we dont fit the classic definition of it, there are ways we can make our own version. i wish doctors would listen to me and would help me find my version instead of insisting on theirs, but they havent, so i wanna try help others find theirs. prt. 2 here (now going to make multiple more posts on this topic lol)

im down

Adult winx club fans should just find a place of completely forgotten land, pay for it together and build a bunch of tiny houses that are exact replicas of the dorm rooms in Winx Club and have parties and fashion shows and also maybe start a band or something

theres been 2 times in my life where i lost every friend i had for being sick its ruthless out there

I didn’t get a lot of love growing up. Things got worse the more queer I became.

I love the way our community does found-family. I spent most of my life finding lost queers and helping them. People come and people go but I was always welcoming people into my family. Always giving what I could give. Always sharing what I know. Always sharing connections.

When I got sick everyone left. Everyone left and I am a ghost.

Turns out when you give give give give and give…people are happy to take.

They don’t come back for you when you need it.

They leave when there’s nothing left to take.

you forgot the one that says “everything”