I Will Head Canon Frankie Stein With Ehlers Danlos Hypermobility And No One Will Stop Me.

psa

no one fucking tells you this so here it is:

when signing out forms to apply for disability / filling out a form for diagnosis

you’re supposed to fill it out as you on your worst days

like, I filled out forms that said I could do most things usually

like, my doctor added in the conditions like “yeah, they can feed themselves when not stressed” “they can do this when not stressed”

but how I should have filled it out was more like

“some days I can’t feed myself” “some days I can’t leave the house”

My doctor didn’t even know this, but I talked to someone who had worked with people with both developmental and intellectual disabilities for a number of years, and she told me to write down how it is for your bad days

this should be a thing they tell you, but it isn’t

part of the reason I didn’t get my autism diagnosis as soon as I should have is because I filled out forms wrong!

Hello from your friendly neighborhood aromantic mom friend and I’m here to tell you about my aro realization for Aromantic week!

Ok so this will be poorly formatted and maybe a bit long.

Ok let’s begin!

I came to terms that I was aromantic a couple months ago though I identified as aro-spec for nearly a year before that.

I realized I was aro in probably a bad way.

For a little over a year, I had convinced myself that I had a crush on my friend who we will refer to as Eggroll.

Eggroll is a sweet girl, she truly is, but she is also obsessed with romance and love and touch and affection. This was something I had to come to terms with in the time of our “flirtationship”.

She was constantly reaching out for I love you’s, constantly in need of affection and live that I simply couldn’t provide. I tried my best, over and over, I forced myself to see a life with her, dates with her, dances, just sweet little moments.

But I just couldn’t get behind it.

This wasn’t the first time this had happened, throughout school, I found myself trying to find people that I found cute or even mildly liked but wasn’t overly close with and slot them into the all to important role of love interest that society insisted was normal for someone of my age.

But it just wasn’t.

And eventually I had to tell Eggroll how I felt.

She was also a bit codependent and a tad insensitive and didn’t listen while also being constantly but hurt if I ever told her I found something rude or was uncomfortable with something.

I told her, over text, one Wednesday, a really emotional day.

She understood, although she felt sad, she sprung right back to her feet by the next week and now is constantly “in love” with nearly every pretty girl she spots.

I’m happy for her, she’s happy for me.

And I get to be happy in my own skin, with a label that I love, that I can relate to.

My experience isn’t the same as everyone else’s but as someone who witnesses identify crises every week and has had many of their own, I am always open to helping anyone who needs it.

This mom friend is a mom friend to all and is here for anyone who need some help, support, and/or platonic or familial love.

I hope you’re having a great day

🖤🤍💚

I'm so extremely serious when I say doctors should be put through an extremely extensive reliscensing process every 10 years. Doctors should have their knowledge scrutinized against current medical research and be de-barred at even the tiniest discrepancy. Too many old doctors absolutely refuse to stay up to date on research and dismiss patients because of their personal experiences. Too many people die every year because doctors don't take us seriously and refuse to listen to people who KNOW something is wrong. Too many people are told their problems are nothing and come back in a year or more with serious illnesses and doctors are just like "lol everyone makes mistakes" but doctors mistakes routinely cost people their lives! I'm tired of medical malpractice being swept away under the guise of "mistakes were made."

As we strive to be more inclusive in theatre and specifically on Broadway, we also need to have the discussion on how much it is appropriate to but actors through. 

Stories about bigotry and the history of it are very important, and in a space like Broadway where you are performing the show over and over, for eight shows a week for a year or more, that can be incredibly taxing. And yes, they are professionals, and part of being professional is being able to hold up a healthy divide between performance and real life, but let me ask you this: If you were doing a show where you were playing a character who got called ugly all throughout the show, would you as the actor be able to go home every night feeling perfectly fine and not having taken those comments to heart? Probably not. And just being called ugly is of course no where near the same level as experiencing racism, sexism, homophobia, transphobia, antisemitism, Islamophobia, etc.

One example of this is the taunting scene in West Side Story, (trigger warning for mentions of sexual assault) a show that is already about gang fighting between one with white members, the Jets, and one who’s members are from Puerto Rico, the Sharks. In the scene if you haven’t seen it, Anita, who is Latina, is pinned down and sexually harassed by members of the Jets. As you can imagine, it’s incredibly hard to watch. And if you are in the very large group of people who have survived sexual assault, especially a woman, ESPECIALLY a woman of color, it can be extremely triggering to see, let alone perform. In fact, Rita Moreno, who played Anita, found the scene incredibly hard to do, as it brought back her own memories of sexual assault. And that was in the movie. I can only imagine how horrible it would be to do eight nights a week in front of over a thousand people.

Clearly, good and accurate representation in theatre and all forms of art does not mean stories that are always about the oppression of whichever group you are trying to represent. It’s about finding that balance between those stories, which are important, and stories that show members of disenfranchised communities not having to face bigotry constantly. And while we work to find that balance, we must remember that just because the bigot is someone playing a character does not mean that the bigotry isn’t real to the person on the receiving end. 

Crab Day

okay, so here's a new info post from the top.

the problem: tumblr is extremely extremely in debt. the current model is not profitable. this is why they are trying to turn the site into a shit clone of every other social media site, so they can attract new users and their money.

solution: not a ton of people can afford a long-term subscriptions like ad-free. however, many of us CAN afford $3 to inflict crabs on another unsuspecting user. (and those that can't, can still enjoy crabs everywhere)

the idea: in the grand traditions of mishapocalypses and goncharovs and tumblr users' obsession with [random inconsequential thing] Days, we create a fund drive/holiday on July 29th, dubbed Crab Day. buy your friends crabs. buy your enemies crabs. blaze posts. post memes. change ur icon. whatever. actually put your money where your mouth is and show @staff that there actually IS profit motive to listen to the current users about what we want this site to look like. (and yes, that means accessibility features too. we currently have zero leverage to demand these features. let's change that.)

i don't know if this will actually go anywhere. worst case scenario, a few of us have fun, tumblr gets a small amount of money, and nothing changes. best case though, we actually provide incentive to keep our stupid hellsite unique.

Reblog to give the person you reblogged it from the energy to do one (1) chore or maybe many

These babes are so cute and I will die on this rock.

High School Bujeet: They lettered in Football/Wrestling and Honors/Mathletes, respectively.

Big shout out to the coalition of Catholic nuns who just told the US bishops to stop being transphobic.

“As members of the body of Christ, we cannot be whole without the full inclusion of transgender, nonbinary, and gender-expansive individuals,” the letter reads. It goes on to argue that “we will remain oppressors until we — as vowed Catholic religious — acknowledge the existence of LGBTQ+ people in our own congregations. We seek to cultivate a faith community where all, especially our transgender, nonbinary, and gender-expansive siblings, experience a deep belonging.”

The letter also states transgender people are “experiencing harm and erasure” in various ways, listing daily discrimination, a groundswell of state-level legislation aimed at LGBTQ rights and “harmful rhetoric from some Christian institutions and their leaders, including the Catholic Church.”

Read about it here

Casually remembering when a classmate mentioned something about burning easily in the sun and I said “pale skin gang” and they paused and said “no I’m definitely paler than you” and pulled up their sleeve.

Now I didn’t mean it as a competition, I feel that’s obvious from the statement, but I plopped down my milky, semi translucent arm and stared them down.

“Holy shit, you could be a vampire”

“Pale skin gang, we all burn together”

Mind you, I can see my veins from my shoulder all the way into my hands

But the nurses can never find a vein that works

Damn you rollie veins