Girlish-in-pain - Maja

Seeking advice: new wheelchair user

I will be using a wheelchair semi-regularly the next month to see if it will help reduce pain flare-ups / baseline pain and to figure out if it's helpful for me.

Tomorrow is the first day and I am going to uni and therapy. I have only used a wheelchair a couple of times but I'm comfortable with folding it and such as my dad's disabled and it's his wheelchair I'm borrowing. In theory I know how to maneuver around but I'm nervous about it.

Do any wheelchair-users have tips/advice for new wheelchair-users?

Extra info: it's a foldable wheelchair, brand is Quickie. I'm nervous about tipping backwards (no anti-tip), going up and down curbs, taking the metro, painful hands/arms/shoulders.

❤️❤️❤️

if you are a trans boy, especially a teenage trans boy, i wanted to say that as a trans man in their 30's, you have my deepest respects and condolences for what you may be going through right now.

it has become socially acceptable and basically online custom to bully teenage trans boys & mascs, call them cringy, or excuse misgendering them for whatever reason. people put trans boys on this pedestal of "must perform masculinity and manhood to cartoonish degrees" even though they're still children.

people make trans boys fight for their manhood before they can even be boys. i am sorry people can be so judgmental and harsh on you. you are not wrong for wanting to be a boy. you are experiencing something wonderful. it's okay if you still want to be a boy even if people have treated you poorly, or tried to make you feel bad for being a boy. there is nothing wrong with being a boy.

it's okay if you never socially transition. it's okay if you're afraid to come out because it's not safe. it's okay if you never change your outward appearance. it's okay if you try very hard to pass but struggle to. it's okay if you wear "women's" clothing and shoes, bras, makeup, etc., it's okay if you're gay and love other men. it's okay if you're scared of hrt. it's okay if you don't want surgery. it's okay if you mainly occupy girl's spaces still. people will find every reason to pick these things apart and ridicule trans boys for, but they are all perfectly fine experiences that do not make you any less of a boy. you are the one who is in control of your transition, presentation, and state of being- you should be able to prioritize your safety over the comfort of random strangers who have no impact over how you live your life.

i've been put through this too, but later in life as i came out when i was an adult. people still try to make me feel bad for identifying as a trans man, for whatever reason they have in their head to justify hatred of a trans person. i've had enough. there will never be an excuse for how people try to excuse the infantilization and abuse that trans men and trans boys face.

take care of yourselves, no matter what age you are, if you are a trans boy, man, or masc you deserve to know that other trans men care about you, especially when people are scrambling to find ways to punch down on you. there are people who suck, but there are also a lot of people who care about you. keep your chin up. you know who you are

Honesty, some of these genuinely changed my life once I started to really listen and incorporated them into it

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

For my American mutuals🫶🏼

Dudes healthcare is so fake. My ADHD meds are $940 without insurance. But they gave me a website of "coupons" which straight up looks like a scam website, and I got it today for $60! Just a coupon from a random website and it was $900 cheaper. America, I am confusion!! America explain!!

disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

about chronic illness and the constant search for blame.

everyone tells you this shit constantly until you start to believe it, and every time it flares up you wonder what you did wrong. on top of the pain, fatigue, and everything else, it starts to feel like a personal failing — like you just aren’t trying hard enough, even if you’re trying as hard as you possibly can just to get through the day.

the only life advice i feel equipped to give:

when you’re young u can only romanticize your pain and hurt for so long. one day you’re going to realize u have to stop sabotaging yourself by assuming your hurt is all that makes you. you have to consider all your good qualities. that u are a bright and creative person who might’ve been dealt a bad hand, and all u can control is how you treat yourself. you have to be kind to yourself to survive. you have to let go of that impulse to treat yourself poorly because u think u deserve it. forgive yourself for whatever makes you feel like you don’t deserve the same love and care as everyone else. please.

time of year i remind every cane user to get an ice pick so you dont fall and die